27.5 months old

Yes, I still count in months. Hard not to. Time for another update.

Jacob is getting big, well taller and taller anyhow,. His surgery that was scheduled last feb was postponed due to yet another illness, it was supposed to have been done next tuesday but once again it was postponed. Jacob has Pneumonia again and is feeling pretty rough and running high fevers.

Daddy took him to the er and sat with him from 5 am until noon, now thats a good Daddy. Lots of tests were run and iv's put and meds given. They did Xrays and caths and blood work, poor baby. His white count was up so they gave him a different antibiotic to try to get it under control.

Because he has been sick he is losing weight. 3 steps forward 2 steps back, He had made it up to 27lb 11oz. We were thrilled but he was back down to 25lb 10oz as of 6 days ago. I will reweigh him when he wakes up from his nap.

He is still not walking, he can take steps when he wants to but they are really stiff and unsteady, his ankles turn in alot and he seems to be in pain so at this point we are not pushing him to walk until we see Ortho on the 8th of April. We are hoping he walks out of there with some braces so that he can have more stability and his ankles stay up and then hoping he can walk soon, or when he is ready.

Jacob is talking up a storm, he is such a smart little man. He still cant have dairy or fruit but he will eat the heck out of anything else you put in front of him. He just doesnt gain weight from it, that is the problem. Hoping we get a new surgery date and that he will be healthy enough to get it done so we can try to get some more answers as to why he has so much trouble gaining and with losing so much weight.

Well now the fun part!! Pictures!

 Jacob out to dinner for his 2nd Birthday!

 Daddy and Jaker's in the ER last week.. it was a long morning and he was a very sick guy.

 Jacob and his siblings out to Chuck E Cheese for his brothers birthdays last weekend

 We stopped at Fort Leonardwood (Lost in the woods) Mo and took photos at the memorial wall, then got the kids pic really quick.

Jacob this was yesterday 27.5 months old. Very skinny dude but hey his diapers will fit forever. Gotta look at the upside somewhere right?

5 days shy of 26 months.

Jacob will be having an upper Endoscopy and Colonoscopy on 26 Feb. They will be biopsying parts of his GI tract to see if they can get some more answers for us. He was up to 25lb 13oz but had a steady drop for no known reason to 24lb 8oz. As of today he is back up to 25lb even and 36 1/4 in tall. His ENT canceled his Tonsil and Adenoid removal for a few months, he said that with his weight gain/loss issues he doesnt want to take away his ability to eat. So its back to the waiting game. Still trying to get in with Nuero and waiting on an 5 March appt with the Ortho doctor to see what is going on with his ankles and legs. Hating all the waiting this state makes me do to figure out what is going on. Jacob is talking a bit more though, most people dont get to hear it much cause he clams up big time around folks. He also took his first steps (4 of them) about a week and a half ago, since then he has been practicing as much as he can and will take a couple steps before falling down. It is a start though. He is def got standing up alone almost mastered though. Its been a long hard road these last 26 months but its been fun, now to see what he can get into during his 2nd year!

23 months 1 week 5 days

Well we tried to get Jacob to do his Upper GI/Swallow study, He would not drink the contrast barium. At all.. he flat refused. And of course the hospital doing it didnt have a plan b or back up plan to him not drinking it. They said oh well we can drop an NG tube and do it that way, then said well we dont have anyone who knows how to drop it though.. Ahhh so we had to reschedule the test and we are doing it at a different hospital that time, where the radiologist knows how to drop NG tubes and we can do it for sure. The hospital and clinics he goes to are in Syracuse 2 hours from home.. so 4 hour drive was for nothing cause they didnt have that back up plan. Oh well we will try again and we will get our answers somehow. Now we are just getting ready for Thanksgiving, it will be Jacobs very first turkey day that he can eat! That is awesome. Now just to make sure that all food is Jacob safe for dinner. We have started doing really well making sure that all dinner is Jacob safe. That means no dairy at all.. you would be amazed at what all has milk in it. No fruit.. his system cant handle it, its bad. No veggies for him, his system will not digest it. No pumpkin.. I know I know.. pumpkin is a staple on turkey day.. but Jacob is allergic so we have to keep him clear of it. 

On the upside he measured 34 1/2 in long with an 18 3/4cm head I believe they said and 24lb 12.5oz at the doctors office. That is a 1lb increase over 3 days or so. Thanks to the steriods he is on for his latest lung ailment.. hey I will take weight gain however it comes though. Now to just keep him over 24lbs that is the goal.. and 25lb by 2!! He is just a bit over 2 weeks away from his 2nd birthday! Im excited to have a 2 year old though not having a baby in the house anymore will be sad.

Jacob 22 months, wrapping up the month and new tircks!

We took the kids to Massachusetts for a TAPS event, then we went to see friends and see the ocean. Jacob loved the ocean! And while at a friends house for the first time ever Jacob stood up (after i stood him up) and stayed up for over a full minute! He is such a miracle baby! He was 22.5 months in the video.

Jacob has been sick lately, he came down with Pneumonia after momma had it, momma is very sorry for making the baby sick. He was up to 24lb 2oz shockingly just prior to getting sick soon after he was down to 22lb 15oz. It has been a fight to get him gaining again since the illness but he was 23lb 4oz just two days ago. We will weigh and measure tomorrrow on his 23 month birthday though. We hope to break the 25lb mark by his 2nd birthday but hey we have dreams right.

Jacob will be going back to the GI doc in a few weeks, at this appt we will discuss the next set of tests he will undergo which they think will be an endoscopy and a colonoscopy along with blood tests for celiac. And we will discuss feeding tube placement. At this point it may be what he needs to get to growing and walking if he has enough nutrients and calories in his body, he just cant take enough by mouth during the day to be where he needs to be.

We also hope to see Jacob standing independently all the time and walking by his 2nd birthday! We have big hopes and dreams for our little man. 

He has learned to navigate the stairs and climb, oh my.. He is talking alot now as well. He loves his daddy, doggies and birdies and the water the ocean was a big hit!

We have been adding to the list of foods that he cant have as well. Pumpkin causes a major reaction with his gut and bottom. Veggies make there way through his system whole and never break down, therefore they are not being used for energy or calories. Fruits cause a major bottom rash that bleeds so we had to cut those out. Milk is still a huge no no for him as well, and you would be shocked at what all has milk in it.

But all in all it has been a very good few months besides the bumps and illness's along the way. We have almost come to a close on his 2nd year of life, I cant wait to see what his 3rd year will bring our way!

22 months old

Well time has flown by and once again i havent updated in a little bit but here goes. At 22 months old Jacob is 23lb 7oz and last check still 34 inches long (though i may need to recheck that). He is still not walking or standing on his own, still very "leany" when you hold his hands to try to walk. Not sure if walking is going to happen soon or 6 more months down the road but its all good, he will get there when he is ready and if not we will try to get a dr that will see him and tell us what the reasoning is behind his not walking.   On 25 Oct Jacob will have surgery to remove his Tonsils and Adenoids, we are hoping this surgery will correct the breathing issues and some of the feeding issues. Right now his T&A are so large they almost totally block his airway when he is upset, that is not good. He has never had any infection or illness from it but the airway issue is big enough that we are going forward with the surgery. In doing the x-ray prior to surgery we also found that his Epiglottis is "Omega" shaped, meaning that it is supposed to be flat across and his is shaped in a V which makes it look very thickened on x-ray which led to the ENT getting very worried and calling us back in right away to scope him to make sure he didn't need admitted. Scary day but all is well on that front. Just one more thing that didnt form correctly for him. Jacob is talking more, actually talking alot. He is a very bright little boy. He also has a very healthy temper LOL.. man he can sure throw a fit when he wants to. That is all for now, i will try to update again around 23m or 2 years.

 Jacob 17.5 months, this is how he crawls.

 17.5 months old during our visit to Springfield, Mo

 Jacob 18.5 months, he can pull himself up now to get to toys.. 19lb 11oz

Jacob almost 18m old.. scrawny little guy.. he can set up though.

We are getting ready to do a big move from Colorado to New York, thinking when we get there i will see if there is anything we can do to help Jacob learn how to walk, though i figure he will be walking before to long anyhow. He is bouncing back and forth weight wise from 19-20lbs. We are hoping to get him gaining soon enough as well but man he is a hard kid to get to gain weight.

17 months update, and big changes coming up.

My Crew of kiddos. Audrianna 10, Tristan 9, Montana 7, Dylan 6, Liberty 3 and Jacob at 17 months.  At Garden of the Gods in Colorado Springs Colorado

                                   Jacob 17m and Daddy having fun at Garden of the Gods 

                           Jacob playing in the tree's 16 months old, In Perryton, Texas. 

                      Jacob playing at the park in Perryton, Texas 16 months. Took a break from the hospital          where his grandpa Charlie was getting ready to lose his battle with cancer the very next day.
 
17 month 2 week 1 day update.

Well Jacob is doing so many more new things, back in April we spent a few weeks in a hotel in Texas because his daddy's father was dying. While in the hotel Jacob learned how to move his body, he can now do the army low crawl very well, He has started pulling up some on somethings but hasnt attempted to take any steps yet, maybe he will now that i said he isnt.    He is up to 19lb 3.5oz and 31 1/2 inches from the best I could do to measure his wiggly booty. He is getting to be a big boy even though he is still low on the weight end. We are now packing our house up for a PCS move to Ft Drum New York so he will be a NY kiddo soon enough. Lets see how much further he gets before we head that way. He is a sweet baby and has an amazing personality. He can say several words like Daddy, Mommy, Bite, Doggy, Hi, Bye, Dadadoooo(not sure what this one means but he loves it.) And his little sing song one of just syllables. He has a big smile for whoever wants to share one and loves to play peek-a-boo. He also loves to play with and love on his baby doll Graham, who apparently looks to real for some people and the reactions are priceless. Here are some newer photo's of the man of the hour, mommy hero!