Wednesday, August 28, 2013

EEG done, now we wait

EEG came back perfect! No seizure activity during the test!

EEG is done. I had to wake Jacob up at 5am but it worked, his EEG was set for 1030 by the time they got him hooked up it was right about 11am. She turned off the tv and the lights and he was out. Took about a half hour to hook him up but he just sat there calmly watching tv the whole time which she measured and drew on his head then cleaned it then applied the goop and wires.. he was amazing. We will know in 7-10 days what the results are. She asked about him jerking in his sleep and I told her he does it alot.. just hope we have some answers soon enough.
                                           Watching Mickey Mouse while she drew the marks
                                                       All wired up and ready to sleep
 All done, she woke him up after about 30m or so then flashed the strobe light for a few minutes then he was unhooked and off for blood work
                                                                    Sleepy but done

Tuesday, August 27, 2013

2 years 8 months

Haven't updated in quite a few months now so I figured it was time for one.

Jacob is 2y8m now. That is 2y6m adjusted though I rarely adjust his age anymore. Sometimes it makes when he does things not seem quite so late though.

About 3 months ago Jacob finally started to walk, we have been so thrilled because for a long time we were worried he would never do this. He is still a bit unsteady and walks "funny" but he walks and that is all that really matters. 

I finally got in to see the Pedi Neurologist a week ago she has set up several tests for Jacob to see if he does in fact have cerebral palsy. He will have an EEG tomorrow and an MRI that is being scheduled, along with an ultrasound to see if the spot in his spine is a split spine, a form of spina bifida occulta.  He was given rescue meds for seizures so that if he starts to seize again we can get them to stop instead of watching him go through it, thankfully..

I weighed Jacob today and he is now a whopping 29lb 3oz!! He is talking up a storm and such a smart kiddo. I do still need to measure to see how tall he is now but I will try to do that tonight.

He is sprouting up but still a scrawny kiddo so it makes clothes just not fit well. He is still fitting his 12/18m shorts but in pants he is close to outgrowing the 2t for length, very close.. his shirts are 2t/3t.. tall kiddo. 

He will go see the Pedi Ortho doc again in October as well as his Pedi GI for his 6m follow up to see if they like the progress he is making.

All is well in our little world.
                                               This shows just how tall he is now! Look at that boy!
                               Earlier today, he loves to make silly smile faces when I try to take his pic
                      His head is almost to the top of the Britax now, thankful for another harness setting
                                   He was awful proud of his "sandwich" he made at dinner.
                                              Jacob at the beach showing off his new pullup
                                                And Jacob having fun at the baseball park
That is all for now photo overload but its been quite a few months since an update.