Well we tried to get Jacob to do his Upper GI/Swallow study, He would not drink the contrast barium. At all.. he flat refused. And of course the hospital doing it didnt have a plan b or back up plan to him not drinking it. They said oh well we can drop an NG tube and do it that way, then said well we dont have anyone who knows how to drop it though.. Ahhh so we had to reschedule the test and we are doing it at a different hospital that time, where the radiologist knows how to drop NG tubes and we can do it for sure. The hospital and clinics he goes to are in Syracuse 2 hours from home.. so 4 hour drive was for nothing cause they didnt have that back up plan. Oh well we will try again and we will get our answers somehow. Now we are just getting ready for Thanksgiving, it will be Jacobs very first turkey day that he can eat! That is awesome. Now just to make sure that all food is Jacob safe for dinner. We have started doing really well making sure that all dinner is Jacob safe. That means no dairy at all.. you would be amazed at what all has milk in it. No fruit.. his system cant handle it, its bad. No veggies for him, his system will not digest it. No pumpkin.. I know I know.. pumpkin is a staple on turkey day.. but Jacob is allergic so we have to keep him clear of it.
On the upside he measured 34 1/2 in long with an 18 3/4cm head I believe they said and 24lb 12.5oz at the doctors office. That is a 1lb increase over 3 days or so. Thanks to the steriods he is on for his latest lung ailment.. hey I will take weight gain however it comes though. Now to just keep him over 24lbs that is the goal.. and 25lb by 2!! He is just a bit over 2 weeks away from his 2nd birthday! Im excited to have a 2 year old though not having a baby in the house anymore will be sad.
Thursday, November 8, 2012
Jacob has been sick lately, he came down with Pneumonia after momma had it, momma is very sorry for making the baby sick. He was up to 24lb 2oz shockingly just prior to getting sick soon after he was down to 22lb 15oz. It has been a fight to get him gaining again since the illness but he was 23lb 4oz just two days ago. We will weigh and measure tomorrrow on his 23 month birthday though. We hope to break the 25lb mark by his 2nd birthday but hey we have dreams right.
Jacob will be going back to the GI doc in a few weeks, at this appt we will discuss the next set of tests he will undergo which they think will be an endoscopy and a colonoscopy along with blood tests for celiac. And we will discuss feeding tube placement. At this point it may be what he needs to get to growing and walking if he has enough nutrients and calories in his body, he just cant take enough by mouth during the day to be where he needs to be.
We also hope to see Jacob standing independently all the time and walking by his 2nd birthday! We have big hopes and dreams for our little man.
He has learned to navigate the stairs and climb, oh my.. He is talking alot now as well. He loves his daddy, doggies and birdies and the water the ocean was a big hit!
We have been adding to the list of foods that he cant have as well. Pumpkin causes a major reaction with his gut and bottom. Veggies make there way through his system whole and never break down, therefore they are not being used for energy or calories. Fruits cause a major bottom rash that bleeds so we had to cut those out. Milk is still a huge no no for him as well, and you would be shocked at what all has milk in it.
But all in all it has been a very good few months besides the bumps and illness's along the way. We have almost come to a close on his 2nd year of life, I cant wait to see what his 3rd year will bring our way!